| duchenne.nl | Duchenne Parent Project | The website provides information about Duchenne muscular dystrophy, the disease, its impact on families, and potential treatments. The project organizes events such as triathlons, conferences, and fundraising campaigns to raise money for research and support families. The website also includes an online shop, annual reports, research projects, and a data platform to promote the involvement of volunteers and donors. | Social Services → Welfare 1001 | duchenne 21 medication 1164 research 8967 event 45199 | |
| dystonievereniging.nl | Dystonie Vereniging | The website covers various forms of dystonia, including cervical dystonia, blepharospasm, and generalized dystonia, and describes the associated symptoms and treatments. Different treatments such as surgical treatments, behavioral therapy, rehabilitation, and medication discussions are discussed, including medications like botulinum toxin and muscle relaxants. The website also offers support through peer support contacts, volunteers, and information about the Dystoniefonds, as well as news, activities and a glossary related to dystonia. | Organizations → Society 767 | peers 89 medication 1164 volunteer 8367 association 8562 treatment 21203 | |
| stichtingafasienederland.nl | Stichting Afasie Nederland | Aphasia is a language disorder that can affect speech, understanding, reading, and writing. The foundation supports scientific research and projects aimed at helping people with aphasia to participate actively in society. Visitors can donate, register, and find information about the foundation, its activities, and the impact of aphasia. | Social Organization → Patient Organizations 259 | aphasia 31 society 1376 donation 5110 foundation 6678 research 8967 | |
| ccsvi.nl | CCSVI.nl | The website provides news updates on CCSVI from 2009 to December 2019. A forum is available where users can share experiences and information related to CCSVI. The website offers an overview of news articles throughout the years, from worldwide 2009 to December 2019. | Local → International Sports 12 | forum 1362 news 15293 | |
| detoer.nl | detoer.nl | The article describes the benefits of installing plastic frames in Lisse, such as improving the value, comfort, and energy efficiency of a home, and discusses the comparison with other materials. The website covers post-traumatic dystrophy (PTD), a condition that causes pain after an injury, such as a fracture, and discusses treatment focused on pain relief. The text explains that the body may have an overreaction to the injury in the case of PTD, which leads to pain. | Chronic Diseases → Pain 450 | plastic frames 95 injury 543 pain 1919 | South-Holland → Lisse 1089 |
| ditiscp.nl | ditiscp.nl | The website provides information about Cerebral Palsy (CP), a motor and posture disorder that often develops before the first year of life. Stories of individuals with CP, such as Marieke, Roos, and Willem, are shared to provide a glimpse into their lives and perspectives. The website encourages visitors to share their own experiences with CP on social media and promotes the dispelling of prejudices. | | quiz 710 lifestyle 2918 social media 3342 story 8285 | |
| netalsjij.nl | Net Als Jij | The website covers topics such as conditions (Cerebral Palsy, Spina Bifida, congenital disorders or limb amputations), energy and overexertion complaints, and aging with a disability. It also addresses themes like life, going out, sexuality, self-image, sports, transportation, future, education, work, independent living, relationships and children, and care. The site offers tools, blogs, vlogs from young people with different disabilities and information about the transition to adult care. | Youth → Young People 30 | personal story 41 young adults 159 condition 425 transition 610 care 12338 | |
| p-l-s.nl | Stichting PLS | The foundation works to increase awareness of PLS and the PLS muscle disease. The website provides information about the PLS disease, including disease progression, symptoms, therapies, aids, patient experiences, research, and frequently asked questions. Sections such as 'For healthcare professionals,' 'Support Us,' and 'Contact' are available. | Social Issues → Social Organization 13315 | disease 285 aid 427 patient 4082 therapy 7448 research 8967 | |
| helpniekleven.nl | Stichting Help Niek Leven | Niek, a 15-year-old boy with a rare connective tissue disease, is experiencing a worsening of his health and is in a serious condition. Despite his condition, Niek is determined to live and the possibility of an operation in Barcelona offers a crucial opportunity to improve his quality of life. Donations and sponsorship are essential to raise the necessary €80,000,- to cover the cost of the operation and associated expenses. | Charities → Fundraising 1005 | disease 285 operation 480 donation 5110 | |
| platformms.nl | MS Foundation | The website provides over 900 experiences stories about MS, ranging from diagnosis to treatment and aids. The MS Foundation’s goal is to support patients, relatives and professionals in improving their quality of life, the care around MS and promoting inclusion. The website is currently outdated, but experience stories are still being updated. Help is being sought to create a new website, potentially for a fee. | Forums & Communities → Social Networks 527 | multiple sclerosis 39 quality of life 111 foundation 6678 | |
| marcelvanhooijdonk-amyotrophic-lateral-sclerosis.nl | ALS Nederland | The website describes Amyotrophic Lateral Sclerosis (ALS) as a progressive neurological disease that leads to muscle weakness and paralysis and often to death due to the failure of breathing muscles. Statistics regarding the prevalence of ALS in the Netherlands, the average life expectancy of patients, and the percentage of patients living longer than five years are presented. The website emphasizes that there is currently only one approved medication to slow the progression of the disease, but not to cure it, and that scientific research is the only way to find a solution. ALS Nederland is responsible for funding this research. The ALS Center in the Netherlands is also mentioned as an important research center. | Neurological Disorders → ALS 12 | als 45 foundation 6678 research 8967 | |
| magnesium-olie.nl | Himalaya | The website covers a wide range of conditions and symptoms where magnesium deficiency may play a role, including mental health issues, autoimmune diseases, chronic fatigue, neurological disorders, and various skin problems. The website highlights the benefits of Himalayan magnesium oil, such as its purity, unique production method, and convenient spray form, and promotes various offers. In addition to magnesium oil, the website offers information about supporting supplements such as Vitamin D3 and MSM, as well as information about Epsom salt and Sodium Bicarbonate, including their applications and benefits. | Minerals → Magnesium 44 | magnesium 167 symptoms 558 supplement 1968 health 6366 | |
| mecvs-longcovid.nl | MECVS-Long Covid | The website describes that the cause of ME/CVS and Long Covid is a virus that affects the nervous system, leading to overstimulation and exhaustion of the nervous system, as well as immune problems. Recovery is possible with the aid of a 6-point Recovery Protocol and various medications and supplements, including daytime, nighttime, pre- and probiotic medicines and nutrients. The website reports that approximately 6600 visitors have visited the site, with visitors from various countries, including Belgium, the USA, Germany, the UK, and France, and emphasizes the need for feedback, particularly from the medical world. | Disease & Treatment → Diseases 829 | long covid 42 nutrients 139 nervous system 144 symptoms 558 | |
| sosv.nl | SOSV | The website features an article titled "The Magic of Birth Charts: A Unique Keepsake of Your Child's Birth," which discusses the popularity of birth charts as a lasting memento of a child's birth. Another article, "The Benefits of Fiberglass Wallpaper," explores the advantages and considerations of using fiberglass wallpaper as a versatile and durable wall covering. A third article, "What are the Advantages and Disadvantages of Plastic Frames," examines the benefits and drawbacks of plastic frames for homes in the Netherlands. | | plastic frames 95 | |
| msa-info.nl | 3xjan | The website combines personal experiences with objective information, with a focus on making one's own choices and maintaining responsibility despite the challenges of MSA. The site arose from the need for structured information about MSA, given the difficulty in finding such resources despite the availability of the internet. Personal blogs are linked to the website, in which the author shares his experiences, feelings, and background regarding life with MSA, starting in the summer of 2013. | Mental & Emotional Well-Being → Support Groups 12 | responsibility 329 choice 827 blog 13392 | |
| sameninsma.nl | MEO Biogen | The books, such as ‘Zac in the Playground’ (read-aloud) and ‘Zac in the Playground’ (coloring book), are specifically designed for children with SMA to help them better understand the disease. The website offers information about SMA and is focused on supporting children and families living with the condition. The books are freely available to provide a tool for children with SMA. | Early Years → Child Education 11 | book 11396 child 11566 | |
| positiva-training.nl | Positiva-training | The training sessions are held in a small-scale, atmospheric and sensory-friendly environment in Nieuw-Vennep, with a maximum of 6-8 participants per hour. The training is specifically designed for people with Parkinson's, CVA, NAH, MS, Alzheimer's, rheumatism and sensory overload, combining boxing therapy with strength and balance exercises. Testimonials from participants highlight the intensive training sessions, the energy and encouragement of trainer Nicole, and the opportunity to exchange experiences with other patients. | Sports → Group Class 2051 | nicole 22 parkinson 120 box 1982 training 28133 | Haarlemmermeer → Nieuw-Vennep 869 |
| berendevoedingendieet.nl | Irmgard Berende | Irmgard Berende is a dietitian who graduated in 1992 from the University of Nijmegen and recently launched her own practice. The practice offers specific services for conditions such as tube feeding, neuromuscular disorders, and non-acquired brain injury. The website provides information on the working methods, rates and reimbursement, as well as contact details and a blog with relevant articles. | Nutrition → Dietetics 816 | brain injury 59 diabetes 750 nutrition 4935 practice 9089 | Eersel → Duizel 88 |
| emotivcoaching.nl | Emotiv.Coaching | The website focuses on supporting people with NCBI and their families, with particular attention to aspects such as finding new goals after the loss of work, coping with changes in relationships, and developing strategies for daily life. The coaching approach is geared towards providing a personal, professional and open collaboration, focusing on helping clients shape their own future. Various coaching programs are offered, including NCBI coaching, family coaching, caregiver coaching, aphasia coaching and illness coaching, as well as training sessions focused on communication with people with aphasia. | Neurology → Dementia 509 Disease & Treatment → Neurological Disorders 100 | ncbi 13 aphasia 31 future 404 caregiver 1167 family 6462 coach 25810 | |
| levenmeteenhersentumor.nl | stophersentumoren.nl | Danielle describes her struggles with the diagnosis, the constant need for dosage, and the frustration this brought with it. The blog includes updates on her medical treatments, such as X-ray photos, MRI scans, and consultations with various specialists (orthopedic surgeon and dermatologist). She shares positive moments, such as travel (with family to Eindhoven during the holidays) and the memory of a fundraising campaign she organized in the past. | Personal Stories → Blogs 33 | fundraising campaign 17 brain tumor 17 blog 13392 | |